Sufjan Stevens: Songwriter ‘cannot walk’ after being diagnosed with rare disease

Story By: BBC

Celebrated indie songwriter Sufjan Stevens says he has lost the ability to walk after being diagnosed with a rare auto-immune condition.

In a rare Instagram post, the musician said he was suffering from Guillain-Barre Syndrome, in which the body’s immune system attacks the nerves.

“Last month I woke up one morning and couldn’t walk,” he wrote.

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“My hands, arms and legs were numb and tingling and I had no strength, no feeling, no mobility.”

The singer explained his brother drove him to hospital, where he was subjected to a barrage of tests, including MRIs, Cat Scans and a spinal tap, before doctors could diagnose his condition.

Guillain-Barre Syndrome is estimated to affect about one person in 100,000 each year, and while the causes are unknown, patients often develop the condition after an infection.

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According to the NHS, most people recover within a year, but treatment can require several months in hospital.

Stevens said he had been in an acute rehabilitation facility since 8 September, and was undergoing “intensive physical therapy/occupational therapy, strength building etc. to get my body back in shape”.

“Most people who have GBS learn to walk again on their own within a year,” he added, “so I am hopeful.”

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